Sunday, 28 October 2012

22 of 31 - Always Happy?

Want to know my biggest pet peeve about having a child with Down syndrome?

Other people. 

And not because people are rude or stare or anything like that.

Really, that almost never happens to us.

It's people who think that everyone with Down syndrome is just happy and cheerful all the time.

Uh, no.  Are you?

Katie has Down syndrome, she's not missing the part of her brain that controls her feelings.  She has all of the same feelings that you and I have.  She is happy a lot, but she's also irritated, grumpy, sad, angry, crabby, excited, scared, and all of the other emotions you feel.


She can throw herself on the floor and have a come apart, just like every other five year old. 

Is that because she has Down syndrome?  No - it's because she is human.


So for every person who thinks that someone with Down syndrome is always happy, please educate yourself.  

And I invite you to come spend a day with Katie and experience the full range of her emotions!

21 of 31 - I Love Mail!


If you read my blog during Katie's adoption, you may remember me writing about a client whose family donated $1,000 to us and then collected donations from their friends and family and sent us more than $2,000 more.  

Well they surprised me again when I received a package at work from them!


They sent us a rum cake and a pack of some yummy gouda cheeses with a lovely note to welcome Katie home and say how happy they were for us.  It was so sweet and thoughtful!  We're going to have them at Thanksgiving, and I can't wait to dig in!

20 of 31 - My Snuggle Bugs


The day they don't want to do this anymore will be a sad, sad day for me.

19 of 31 - Nashville Buddy Walk!


I was a co-host of the Nashville Buddy Walk Reece's Rainbow table.



We had an AWESOME table!!


One of the other girls had a fantastic idea to print 100 kids from RR and tie their pictures, descriptions, and grant fund amounts to water bottles.  We gave lots of waters away, and saw several people looking at the pictures and talking.


We won first place for best non-profit table!


We also had an Already Home board with before and after photos of some Reece's Rainbow sweeties who are home.  I'm sure you probably recognize some of those faces!


The boys loved this photo board.


They made their best "I'm lifting a car" faces.


Or not...


My friend Amber, also a RR mama of sweet baby Anna Gray, took this picture of Katie and me.  I love it!  Katie had gotten up very early that day and was not feeling very smiley, but Amber caught her!


These are all RR babies.  Well, except Jack!


I was so, so excited to see my friend Shana!  She and her husband brought an adorable little pumpkin named Cooper home recently, and he is a love.  I was thrilled to see her family and give her a big hug.


We got all lined up for the one mile walk.  And realized that we'd be walking at a snail's pace because there were roughly four thousand people walking.  We quickly bailed on the walk and went to the playground.


The boys were running around too fast to take a picture of them!


We had a great morning at the walk, and we'll definitely do it again next year.  Thank you to each of you who donated to help support Katie's Crew!



Saturday, 27 October 2012

18 of 31 - School Lunches


Do your kids bring their lunch to school?

David and Jack pack lunch every day, Henry at least twice a week (because I make him!) and Katie occasionally.  These Ziploc containers, which I think were around $2.50 or $3.00 for a pack of two, are the absolute best thing I bought for back to school.  I use them every single day.  They fit perfectly inside of their lunchboxes, and they are perfectly portioned.  I definitely recommend them!

17 of 31 - Scary Business!

We live in a very old house.

It's about 120 years old.

We're not really sure, because (according to the story we've been told) the courthouse where the deeds were stored in our county burned down in the early 1900s and all of the deeds burned with it.  After the fire, properties were re-deeded back to around the time of the fire.  As with any old house, there's always maintenance that needs to be done.  Like, you know, the entire exterior of our house.  When we bought our house, the interior had been redone entirely with beautiful hardwood floors, a new kitchen with stainless steel appliances, and all of the original moldings and trim work had been restored.  The outside?  Sort of looks like a haunted house.  There were vines growing on it, paint peeling, no real landscaping to speak of, and several clapboards that need replacing.  You know the old saying, you can't judge a book by its cover.....

Fast forward to the molding above Katie's window falling off. . .  From about 20 feet up in the air!  We need to replace the molding, but there was also a small hole where the corner of the molding had been.  I have been nagging Chris constantly gently reminding Chris that the hole needs to be repaired and needed to be done about six months ago.  Keep in mind, this is a second story window and is roughly 25 feet up.


My parents were over last weekend, and Chris and my dad dragged the extension ladder around to the front of the house to get started on the project.  First Chris took a look.


Then my dad took a look.  I really didn't want my dad up on the ladder.  He's quite capable of fixing the issue, but he's also absolutely the most accident prone person I've ever met in my life.  He's cut off the tip of his finger, broken his hand starting a weed eater, been in a motorcycle accident, been in a head on collision, hit himself in the face with a bungee cord and had to get stitches, ripped a gaping gash in his leg fixing a hot tub. . . I could go on and on.  I saw nothing but potential for sudden death with him on a 32 foot extension ladder.


Once Chris determined what he needed to do, we (meaning everyone but Chris, because let's be honest, he was the only person doing any work at this point) had a sit on the porch.  And yes, Jack is wearing a cape.  And Katie is wearing no pants.  This is how we roll.


Chris changed his shorts so they wouldn't fall off at the top of the ladder so he had a pocket to put a hammer in and - after a lot of psyching himself up - climbed up with his hammer, a board to repair the hold, and some nails.

And the board was too big.


He came back down the ladder, went back to the shed, cut the board down, and came back to the front of the house.

Up he went again.


All in all, it seriously took him less than five minutes on the ladder to fix it.  

And then our neighbor came over and said he could bring a cherry picker home from work in a few weeks and zip him up there to finish the project.... I was waiting for Chris to kiss the man on the lips, he was so excited not to have to go back up the ladder.

And I was excited to not have to verify his coverage on his life insurance policy.

16 of 31 - What a Difference


March 2012


April 2012


May 2012



October 2012

Most days, I cannot believe the transformation that is happening right before my eyes.

We are so lucky.